One of the underdiscussed tragedies of covid is the fact that a ton of newly disabled people have been shoved into the discursive spotlight as the dominant voice on disability issues to spew frankly rancid takes
Basically everything said i have immense compassion and solidarity and time for coming from struggling individuals but whej spoken as a major discursive line, many of these takes are having pretty disastrous effects on the discourse and efficacy of the socio-medical field of chronic illness management and justice
Long covid is real, and debilitating. It’s also novel– the longest anyone can possibly have had long covid is about 5 years. I don’t know that I know any chronically ill person who’s condition arose as an adult who’ve made meaningful progress in managing their illness well in under 5 years; NOR anyone who hasn’t made significant progress coping in under 10 years.
Becoming disabled is terrifying and there’s a lot of grief and frustration and rage to work through– and a lot of ableism. Most people who became #disabilityjusticeadvocates after being disabled by long covid have absolutely 0 knowledge of the history or tactics of disabled movements. Frankly offensive and ludicrous comparisons to AIDS, for example, run rampant– despite the fact this is nothing like AIDS and ppl making these comparisons appear to be only passingly familiar with the AIDS epidemic and wholly unaware of the current abuse and criminalization forced on ppl who are HIV+. We can make critiques of how capitalism and frankly civilized society disables people, specific political critiques of covid even, without rudely and unhelpfully asserting that this is the Worst Thing That’s Happened And Nobodys Ever Had It As Bad As You. It is not, and will never be, *literally illegal* to have long covid. Fuck, governments actually DID SOMETHING and responded!! It sucked, because it will always suck, it pushed poor people hardest, and so on, but cmon. You cannot seriously compare problematic but prompt vaccine rollouts and ongoing intense research into management and cures to 20 years of unaddressed death; nor a “resistance” movement that essentially amounts to insults & ineffectual propaganda to one that worked extremely hard at building communal support structures and making legit gains. Yall ain’t even pumping infected air into the cdc offices. Smh.
My heart fucking hurts for the huge numbers of ppl who have become disabled without access to support and then asked to become discursive authorities on disability while still trying to figure out what living as a newly disabled person can look like, but I’m also fully pissed at the behavior of some of yall and how bystanders willing platform really ineffectual and frankly ableist shit because of “listening to affected voices”.
People ARE making moves– there are support groups and communities sharing new strategies both from DIY versions of new literature and observations from personal experiments. Nicotine patches are what I’m aware of most recently and i bieve Four Theives published a guide to a drug that *cures* a meaningful, but not fda-requirememt-satisfying # of cases. It is possible to take strides, movement is still possible, it is important to not lose rage or critique! AND everyone is still figuring this thing out (let me reiterate that long covid is getting a comparatively huge amount of research and attention than many other chronic illnesses, like fr) & the least some of yall can fucking do is not drag the entire concept of chronic illness management down in your despair.