America’s Most Popular Autism Therapy May Not Work — and May Seriously Harm Patients’ Mental Health
“Based on data gleaned from the nearly 10 million military dependents it insures, the U.S. Department of Defense has repeatedly called the evidence supporting ABA “weak,” noting there is no research to determine whether the small number of participants who show improvement — 15% — do so because of treatment or simply because a child has matured. After a year of the therapy, the department reported to Congress in 2019, 76% of 16,000 participating autistic children saw no change, and 9% worsened.”
Okay before we get anyone on here saying “water is wet”, here are some other bullet points about the article.
- The article uses proper terminology and actually defines stimming, masking, and many other words that neurotypical people may or may not know (re autism)
- The data that the article is based off of includes first hand accounts from autistic people who have gone through ABA. The researchers even used ASAN (autism self advocacy) as a resource! Actual autistic people shared their stories!!! And they believed us!!!!!
- It explains WHY autistic people have a hard time with ABA, which is incredible. Not just the fact that it’s akin to training a dog, but the psychology of it, and how it’s overstimulating and degrading
- There’s a part that does quote from Auti$m $peaks spokespeople, BUT it’s because they’re leading into how neurotypical parents see ABA most often as a “saving grace” to get a “normal child” and then goes on to tell more about how autistic children perceive ABA, both during and after treatment
- One family’s story tells of how a mother noticed her autistic son would actually hide when she went to turn the computer on for ABA therapy (this was during COVID lockdown) and how she realized something was off because of that. She canceled ABA and found an alternative (called Floor Time) where the child actually directs the play, and the therapist/teacher goes along with what the kid wants/does!
- There’s a really cool bit on why ABA is usually the only thing available to parents, and the answer is Shitty American Healthcare/Insurance Companies!
- It notes that ABA therapists don’t really have strict training requirements. You can do a quick online course and become an ABA therapist. It does not require a college degree. That should horrify you.
- There’s another parallel study with its own data coming out in 2025
Honestly, this whole article is a gem. Remember, while “water is wet” studies seem trivial, we need them in order to get our side of the story taken seriously. Research with credible data that backs up what we’ve been saying is important!
TL; DR?
Huge study with lots of input from autistic people tells us ABA sucks!
Thank you for this addition. A better encouragement for this article than I managed!
Also the thing about ‘water is wet’ statements is that when it comes to attempting to change actual policy, especially in health care, and especially when convincing insurance companies to for out the cash for something, statements of 'this is obviously bad’ or 'everyone knows x or y’ don’t cut it.
If you want to change something that’s a policy, or even just a convention, then you need to prove that there is reason to make that change.
I’m in archaeology and had a student tell me a study we were discussing was pointless because 'everyone knows people had bad teeth back then’, only to not be able to answer when I asked 'how do we know for sure if we don’t count the bad teeth?’
Studies like the one in the article are massive achievements because it’s a huge dataset and it is providing the actual data to back up the 'water is wet’ statements. Now when someone, especially an insurance company, tries to suggest that ABA is the only therapy that could possibly be offered, you can point to this study and go 'why are you paying for shit that doesn’t work?’.
This! Is! An! Amazing! Addition!